This blog is set-up as a diary to my cancer-fighting journey. Diagnosed stage 2 breast cancer in July 2013 when I'm 31. And I'm making every second counts there on... How life takes a second chance and re-looking at the priorities in life...

Thursday, December 5, 2013

Third Time's Charm

Not really working its charm on me, but I'm finally identifying the patterns and/or the side effects of the weekly PAC + Herceptin after this 3rd infusion.

And hopefully being able to manage them better before panicking into some wild imagination of what's happening to me...

Throughout the 3 hours infusion in the morning, I get drowsy 5 minutes into the dexamethasone. It's one of the 3 anti-allergies medication before they switch to PAC and then Herceptin. Read about the side effects here: http://www.drugs.com/sfx/dexamethasone-side-effects.html

The rest of my day would be slight dizziness and feeling weak with motions and really slow in speech. As a matter of fact, it's bad delay in digesting information received and constructing words to deliver out. 

Towards the evening, or slightly after dinner, the taste in the mouth is metallic-y (like how I felt during AC infusion too). Luckily this is more manageable and weird taste will go away by the 3rd day. The weird taste can be covered by drinking warm water or anything but room temp water.

The most troubling effect for the first day, must be the sleepless night. And I blame it all to the dexamethasone again. My mind just couldn't stop thinking, worrying, wandering, working no matter how tired I am. The eyes are really heavy but I wouldn't stop opening again to check out the room. I think I only managed to catch 3 hour sleep last night. Plus the mood swing, it sucks big time!

And yes, thought of jotting down all these side effects came to me during the midnight too! 

Today (the 2nd day), I will expect body chills, unexplained body flushes accompanying too. But regular temperature checks have always assured everything's fine. 

Then the 'body ache' slowly kicking in during 2nd or 3rd day. For my case, the pain is mostly felt at my surgery site. Last week, I almost rushed down to the hospital for this. The pulling pain felt like the sharp pain I had before the surgery and it was really worrying. Thankfully it went away after the 4th day.

The remaining 5th, 6th or 7th day are identified as the 'good days' as I get to chill and go out smell fresh air a little. And lucky for me, cos they always are the weekends, cos my infusion is usually Tuesday or Wednesday.

Despite Doc O had told me that the 'good days' would be the lower immunity days as blood counts would be decreased by this window frame. But being happy and uplifted matters most, isn't it?

Other than the above, sometimes I feel the fingers tingling a little. I hope the numbness won't kick in so early, not until my last few infusion. Doc and fellowfigthter friend told me to expect this around the 5–8 infusion.

Lastly, tummy irritation, it feels the need to go all the time! But in actual fact, I actually encounter slight constipation.

All in all, keeping bacteria/germs/virus at bay and a good steady blood counts throughout the whole course — expected to end by my birthday next year. 

Fighting!!

Thursday, November 21, 2013

Weekly PAC + Herceptin for 12 weeks

Well, say hello to my new regime, the weekly Paclitaxel and Herceptin, that is!

Did the first regime which took about 5.5hours yesterday at the hospital. Still keeping my fingers crossed, but I'm feeling pretty ok so far. The long hour is because the drip was being run slow to monitor closely in case I develop any allergies or discomfort while receiving treatment. I was told that for the 2nd week, it'll probably be 1 hour faster, and 3rd week onwards, will be kept at normal pace, where it usually ends in 3 hours.


How this treatment was given?
First, the nurse gave me 2 panadols to prevent the flu-like symptoms and body ache before we started. Followed by anti-allergies drips which caused me really drowsy on the spot (like a very very strong flu medicines). I fell to sleep immediately, or perhaps forcing myself to shut my eyes to avoid seeing the world in front me swayed.

Then I heard nurses waking me up to check on my IC number and notifying me that they were starting on the PAC drip and asked me to raise any discomfort, if any. Still feeling drowsy, there was nothing I could do but continue to snug myself asleep inside the blanket. Note to self: there's no need to bring any book or the iPad the next time, cos I'd probably be sleeping again :)

When the drowsiness slowly getting off, I asked for assistance for toilet trips. I like how this treatment didn't show up or smell anything different during the toilet business. (mind me, but AC left me feeling disgusted everytime I did my toilet business!)

Nurses took turns to check on my blood pressure and temperature during the treatment. The last 1.5 hours, the drip was switched to the mighty Herceptin. Why mighty? It must have some reasons that this drugs itself cause so much. The total cost for the treatment yesterday was about 4x of my single AC treatment. I'm thankful for the continuous insurance coverage!


Speaking of insurance coverage, I checked with my oncologist, Dr O too on how would we know that the C cells are gone in my body. He was a honest 'almost–like–your–lunch–buddy–friend', who actually replied that all these treatments that I'm receiving, is similar to buying insurance to assure myself. Aka there is no guarantee.

Only check that I need to run is yearly mammogram. When asked why no CT scan, he said with CT scan comes strong radioactive, and radioactive triggers the big C! Doctors would never advise the scans when there is nothing suspicious showing up anywhere, claims Dr O. And the CT scan itself is not able to see or capture anything with no standing 'suspect' to support. 


And the ignorant me just learnt that my C is a strongly hormonal triggered C, which explained why I need Herceptin (read about Herceptin here: http://www.macmillan.org.uk/Cancerinformation/Cancertreatment/Treatmenttypes/Biologicaltherapies/Monoclonalantibodies/Trastuzumab.aspx). And he helped explained something which the arrogant Dr Y never did. The period needs to be stopped, I had to go through the early menopause to ensure the hormones are gone. When the hormones or the periods are stopped, there's a bigger winning or assurance for me to stay C-free! So I understand now. So I'm not feeling so discouraged by it anymore! To think the silly me still feel so elated when I'm still able to have my period during AC, and even now while I'm composing this post :X

The importance of good doctor really!

Hearing about how Herceptin gonna stop the hormones soon, saddens me that I actually wished I had given birth to more than 2 kids! Kids who could actually bring joy to the family and growing up together with us. 

A lot of should have, could have, ... The more I should treasure and live life to the fullest...

Til later :)


Monday, October 28, 2013

The end of 3rd AC chemo

Was feeling kinda uninspired and less motivated the last few weeks — after my 3rd AC chemo. The plunge of mood swings was extremely annoying and disturbing the rests I could have taken. 

I finally gathered more sense than sentiments. But, it's time for 4th AC already, tomorrow! On a bright note, I look forward to the end of AC. I must celebrate it! I hope this mindset would help me go through the lousy days better.

Look forward to the weekly chemo starting in end Nov, where the docs, nurses and fellow fighters claimed to be a much easier one. 

Fight on!

+++++++++

Oh, before the end of Oct, which is the month of Breast Cancer Awareness. What I think would really help for us, BC patients, are please to treat each of us like a normal person. No shocked, scared, curious or alienated gaze or stares when you see us in our hats/wigs/beanies/turbans or whatsoever.

We would like to live normal. That's the very least we ask for. 

@.@

Monday, September 23, 2013

Day 5 of 2nd AC Chemo

Overall, this is a much manageable post-chemo than the 1st one.

I managed to sit up rather than lie down flat.
Weight stays the same although I had light diet.
No throwing up so far.
Better sleep at night, which could be resulted from no nap in the day time.

Other discomfort were the side effects of blood count booster injection which I jabbed myself on the 2nd, 3rd and 4th day post chemo. That jab created unexplainable headache, neckpain, muscle aches and backpain. I think I can feel them all fading away today.

One thing which I'm not quite pleased now is the symptoms of getting UTI. I have tried my very best to drink whatever liquid and juices I can, and no urine holding. I'm still having a close fight with it now. Hope I could win the battle!

All in all, my appetite is slowly picking up, although still very picky on the choice of food. 
I'm almost hungry every moment but there's not all kind of food that I could tolerate.

I promise to stay well in the next 2 weeks!

Thursday, September 19, 2013

Amazingly Calm

Dropped my newly upgraded iOS-7 iPhone to the floor tonight, leaving a pretty bad crack on the screen. My 4yo-boy was shocked cos I was trying to attend to his crying — which looked like an incident or maybe an act of bulling while playing with his sister. My 6yo-girl burst into tears feeling guilty to have caused the boo boo to happen.

With my clumsy slippery hand to leave the phone on the cupboard, it was really no one to blame but myself. Plus I recently swooped the non-slippery casing due to its worn-out condition, I think I've seen this coming...

Quickly chugged aside the phone, I went to hug my girl, and asked her not to cry over a cracked phone. I told her it's not her fault. Besides, it's only a phone! What's the point of crying over it?

That moment, I found myself amazingly calm. If this were to happen 2 months ago, I'd probably reacted differently. It's only true that when you have gotten through bad times, you are able to see things from another perspective. And able to set the priorities differently, in a better way of course.

And I'm glad to be able to soothe and share the lessons to my children right on the spot. Of not making a hoo-ha over small non-living matters in life. 

Friday, September 13, 2013

Happiness is The Best Medicine

As I was waiting for the doctors to make their rounds this morning, I was secretly hoping for an early discharge today, as the weekend is approaching, it's really bored to be isolated in this single bedded room. I have not stepped out of this room since Monday late evening when I reached the ward.

But then again, one of the doctors estimated the earliest to be discharge could be during the weekend, and not today, Friday.

So I had my routine breakfast, easy stretching, doses of iPad and iPhone games since 5am blood test. I even learned to do the booster injection myself, with the supervision of the nurse this morning. Because very likely I would need this injection after my 2nd AC chemo next Wednesday. The thought of traveling to the hospital with the sick nauseous just to have 1-min injection really sickens the mind and the body. So I did it, it wasn't difficult. I just needed the courage to poke the short needle into my stomach fat. The above sickening thought will be my future courage to do it at home :)

Then the doctors came visiting. I threw the question playfully, "Can I go home today?" And the stunning beautiful Dr TT joined me along, "Oh Yes!" Did I hear it correctly? "Really?!?" And again she said, "YES!"

My white blood count has gone up to about 7, and the neutrophils at about 5. I didn't develop fever the whole of yesterday. Mild 37.5 deg is acceptable. My blood test for culture test went negative for 2 times. My urine is clear too. Oh yeah baby! Only thing is the reddish on my op site has to be self-monitored with continuous applying of moisturizing cream.

Soon after the doctors left, I literally danced and cheered to the music playing on the radio. It's indeed a good day! I could go back to my babies and snug close to them over the weekend. Oh how I miss them!

I realized my headache disappeared, my back pain too! Magical, isn't it?
Dear hair fall multiplies as days pass by. I feel much lighter on the head now, I had probably lost 10-20% of my total hair now. Or maybe more. Even the doctors find it amusing to see me picking up fallen hair from the pillow and bed sheet while gently stroking for more hair to come down — with my iPad camera turned on facing myself (the mirror effect).

I've done my shower, changed to home clothes, now waiting for paperwork, medicine by the pharmacy and nurse to remove my 'plug'. Believe it or not, this plug has been the most comfortable one so far which I  could sometimes forget it's even there.

All's good after a 4 nights stay. A stronger immunity. Spirits are soaring. I don't fear you anymore, AC! I will be taking good care of myself and get over you. Bring it on!!!

Wednesday, September 11, 2013

If It's Not Me, Then Who...?

Today is a much better day for me as I find myself in a higher spirits and loads of positive energy!

I have some mantras and do talking to the inner-self about going through the tough times. 

Shower was less scary even though the hairfall is worse. Here's what I said to myself, "Dear Hair, I won't fear you anymore cos you are actually part of myself, and it's a pity that you can't stay on my scalp for now. I'm gonna bid goodbye to you temporary. Go easy when you fall. I'd be missing you with a softer, fuller regrowth next year. I'll see you soon. Be good!"

And the hair shower went beautifully and more calming. Good job to me!

I've thought it over and over again. Nobody could actually help in making the process easier but myself. So why resist? Why complain and nag? If I've been chosen as the 'lucky' one to face this, I do believe everything happen for a reason. And this reason I'd like to believe is I'm here to inspire the others. 

I'm chosen cos I'm strong enough to tell the people around me, that everything's gonna be okay! And here I choose to be positive, to see the silver linings, to be grateful for every little thing, so the journey would be an easier one.

And like how my dear friend's golden wisdom goes, "This too will pass!"

So if it's not me, then who..?

...

Slight update on day 2 of admission:
Neutrophils (substance from the white blood count) is still found to be low, so the doctor has given me a booster injection for it to pickup soon. Fever still persists, blood was just withdrawn again to check if there's any new growth of bacteria. It was my first time to experience withdrawal from the groin area. In fact it's less painful, only with the lingering feeling.

Buck up please, dear body!

Tuesday, September 10, 2013

No Matter What It Takes

A dear friend message:
Pls keep ur mind free from all thoughts except focusing on getting the ordeal over and getting well. Do not mind abt appearance coz tat shud not matter now. Most impt is focus only on getting well not matter wat it takes ok!!!

Thank you dear friend...

...

Speaking about the hair fall I witnessed while I took my shower earlier. Loads of them just trapped on the hand like those anti-hairfall salon advertisement. And the same scalp spot can repeatedly releases the same amount of hairfall if I stroke again.

I need to shave it so badly now...

What Have I Gotten Myself Into?

It's the 12th day post chemo, and hello! Greetings from an isolated ward of another public hospital.

It's the moment of you think you could escape being admitted but you're not.

I got admitted due to sepsis neutropenia. In another words, my white blood counts have dropped to a super low 0.9 last night and a persistent on-and-off fever since last Thu, 5 Sep 2013. With an almost '0' immunity level now, any slightest bacteria could turn complicated and means serious business to me. So that explains the isolated ward they provide, which I think is the perks for being upgraded FOC.

Last Thu when the fever started, I have come down to the A&E department as advised in my chemo booklet. Did blood test, urine test and chest x-ray to see source of infections and they found traces of infection in the urine. But I was released and sent home after several packs of drip which include antibiotic, and solution to stabilize my rapid heart beat. Doctor was convinced cos my white blood count was still a soaring high 10. But she had written me a letter to go back to polyclinic on Mon (which was yesterday) for a blood test to ensure I'm fighting the infection well.

Who would have thought in the span of 4 days, the white blood count dipped so fast and so low that I must be experiencing the 'nadir' now. Like the range of lowest blood count before they start to pick up in the 3rd week and ready for the next chemo cycle.

So when the doctor from polyclinic explained my condition and started writing a referral letter for me to go back to the hospital, I let out a sigh and a non-expressive smile. I felt resigned and I just had to go back and pack well before heading to the hospital again. 

I told myself, treat it as a staycation, with so many assuring cares from the professionals at the 'hotel'. Why should I fear? 

Initially it did feel like one, when I didn't have to open a 'plug' on my poor arm. But 2 hours after settling down in the ward, on-call doctors told me the needed to give me a broader antibiotic to 'shield' me. And the only way is through this 'plug' aka intravenously.

That's exactly when I frowned like the face of my children when I said no more playtime! That's the end of staycation and back to the reality. Furthermore, the anxiety of the staff nurse and doctor were felt when they were trying to find a good vein on my left arm. "That same old stuff again.. Again and again..", I nagged myself in the heart.

What have I gotten myself into? Will I be facing such nadir and infections again each time I have my AC chemo cycle?? Please grant me stronger immunity and health to go through this tough time!

On the side note, there are noticeable hair falls now. On the pillow sheet, in the toilet. It is all happening.....

.....

Knowledge sharing:
Chemotherapy kills all cells that are dividing rapidly as that is the trait of cancer cells. So in our body system, there are other good cells that are dividing rapidly too for example the most obvious ones: the cells for the hair growth, the bone marrow which produces all blood cells, the skin and nail growth, and something from the mouth which caring for oral is important too. 

When the bone marrow is being affected, these 3 little babies here are low in production too:
Red blood cells — carries oxygen therefore causes fatigue and lack of energy
White blood cells — fight infection whenever there's a site of infection in the body
Platelets — cells fragments and when the volume is low, excessive bleeding will occur


Thursday, September 5, 2013

A Week Post 1st Cycle of Chemotherapy

Finally I'm back. I had my 1st cycle of my 3-weekly AC chemo in 29 Aug 2013. That's about 4 weeks after the mastectomy. 

The medicine has left me feeling really nauseous in the 1st 3 days, and caused me to lose 4 kgs in the blink of an eye. What I could do was really lay down flat, toilet break and that's about it. That queasy feeling was worse than during the course of pregnancy. I hated the change of taste too and that made me having difficulty downing liquid. Plain water tastes like metallic. The best savior was red tea with a hint of brown sugar, and H2O drink (extra perks for replacing the salt and minerals in the body).

By the 4th day, things were taking a better turn. I was so elated I could finally eat. And every mealtime is now the best event I look forward to! Overall, the noticeable changes so far post chemo are:
— change of taste
— smaller intake of food yet much more regularly
— dry skin which leads to excessive oil-production on face
— coarse hair which feels like they are at the verge of breaking
— more frequent toilet breaks (should be my fear of holding the bladder which will harm the organs)
— chemobrain (difficulty of thinking or thinking through the fog)
— less energy and stamina

I hope with this experience, I could manage the 2nd cycle in 18 Sep better. 

Friday, August 23, 2013

Overloaded and Overwhelmed

So the husband and I visited the oncologist last 2 days (Wed, 21 Aug). We managed to see this lady oncologist Dr Y through a force booking as the other 2 oncologists were even more packed with patients.

It didn't happen with no reason. We both were not very pleased with her. She showed little smile in the first 5 mins and then she put up a stern face with a rather unfriendly attitude. She must be the first medical practitioner I've met who extends no care nor concern to the patient. She just went on and on with a 'templated' talk and reply. And the last few responses to my answer was, "if you wait outside, there'll be a nurse to explain further details to you..."

Even the serious and very busy senior surgeon, Dr H bothers to spend few minutes to share his sympathy and concern when talking to me. Anyway, I'd ask for a change in the doctor soon without compromising the chemotherapy schedule.

The dose and outline of treatments I require look like this:
1. 4 cycles of 3-weekly chemo
2. 12 cycles of weekly chemo
3. 14 cycles of 3-weekly targeted therapy
4. at least 5 years of anti-hormonal medicines, if not 10 years.
5. then see the radiotherapist for an open discussion and suggestion if I need to have a radiotherapy

That sure looks like a hell lot of treatments. I did the calculation, it will take me approx 1.5yrs to complete up til step 3. And this is clearly not what I've expected. But then again, as shared by the not-so-friendly oncologist, I had an invasive and aggressive tumor. That's actually the first time somebody said that right to my face!

...

As systematic as it is, I was then asked to perform a heart-scan called MUGA, arranged to view a video about chemotherapy, and lastly met up with an oncologist pharmacist to have counseling session.

I have done all of them yesterday (Thu, 22 Aug). MUGA was similar with bone scan, which I did before surgery. A special lining was given to me intravenously 15 mins before the radioactive med. Then I was asked to lie down on the same bed of camera. The 'photo-taking' procedure took about 20mins. Didn't doze off like I used to due to the discomfort position to my right arm.

IV insertion has since became harder too cos I was only left with the choice of left hand. As the previous nurses commented, the vein on the left hand was so much finer than the right. And I actually have 3 bruises on the left hand now, 2 from the surgery day and 1 fresh one yesterday. And this would be the procedure I have to go through most from now on.

I was briefed that each time prior the chemo cycle start, a blood test must be performed a week before to ensure that my blood count is sufficient to take on chemo. And all of my 3 steps therapies mentioned above have to be inserted intravenously. The veins better be coorporating!

...

With different practitioners briefing me the many side effects of the therapies, what i should do, how would i feel, what i should be eating blah blah blah, and the books and online sites I've been reading, I'm getting a bit withdrawal symptoms now to all of the information. I feel overloaded and overwhelmed.

I felt my mind was spinning for the 2nd time when Dr Y did her templated explanation. And she did quite ungraciously by adding on deep breathing and loud exhaling each time she closes a sentence with a full stop. Then there was the counter staff who explained the hefty amount of the upcoming therapies. I hated that moment, I felt like shouting my lung out, "STOP!" I couldn't digest anymore. And now I'm putting all the booklets, pamphlets, library books as far away as they could.

I distracted myself by putting aside all the thoughts. I come to the blog to release these angst. I analyze that upsets me is no longer about losing a breast, feeling the post-op discomfort or going to be bald. It's that I cannot live the life I used to be anymore.

The therapies are going to cause infertility. A permanent decline in memory which may cause me to be forgetful. A possible menopause. And an increased risk of other cancers (what??!?!)

...

The happy news today is that my mummy seems to have get over the fact. She's so much positive when she talked to me last night. It's like a yin-yang effect. When she's down, I showed her how strong I could be. And when she's positive, I'm the direct opposite.

I pray for a smooth therapies in the coming months!

Tuesday, August 20, 2013

Over 2 Weeks Now

It's slightly 2 weeks over from the day of surgery.

Since the last post, I have went back to the hospital twice for seroma extraction.
100ml on 14 Aug (Wed) — 2 days interval from previous extraction
200ml on 19 Aug (Mon) — 5 days interval from previous extraction

Can see that the amount is slowly decreasing now. And T's assistant had told me today that my wound looks quite well recovered cos the muscle are slowly building up, with less airy space or room for seroma too.

And today I heard it for the very first time from this nurse, that the numbness/tightness/pulling sensation on the under arm might take up to 1 year to fully recover. So far the answer I've been getting was, "you'll get there in time", "it takes some time", "one step at at time..." Although a bit disappointed in finding out the time count to be 1 year, but I'm quite happy to find out that what I'm going through now is within the normal range, and there's finally a 'parameter' set to gauge my progress.

I shall look forward to that. Although another disturbing find lately is that what I thought to be a swollen tissue on the underarm and slightly at the back, is actually my own fat which would probably stay there forever. As difficult as it is to understand, I try to explain it in my own words as the 'after effect' of surgery. The aftermath of cutting open the body, to removal of breast tissue and finally sealing up the wide opening (of about 20cm) back to the original state as it could be.

So here I'm having that bulky fat which I joke to the family members as my branded purse, clutch or perhaps pouch. Unless I exercise to lose some weight, or future reconstruction surgery to fix it.

Or maybe there's another way to achieve it — after chemotherapy.

Appointment with Dr H last Wed (14 Aug) has also confirmed that I would require chemotherapy, some medicine for about a year and future anti-hormones medicine for at least 5 years down the road. Dr H also shared on the lab test result from my surgery that it's indeed a stage 2 breast cancer, with one 25mm cancerous tumour (the lump) and 2 cancerous lymph nodes safely removed together with the breast tissue.

Dr H did say a little magical sentence of "I think there's a cure to this" before I left his clinic. However, I'm not going to take anything for granted anymore. I'm going to take on all the advices and medical recommendations from the medical oncologist this coming Wed (21 Aug) and I will fight on.

I will gain a complete recovery and cherish a new life!

Tuesday, August 13, 2013

Being At Home

Having been at home for about 4 days now, I have trained a better stamina slowly but surely. Another thing to cheer is that I have trained my over-pampered left hand and arm to be able to pick-up simple chores already. A few things which are not progressing as good are probably my ability to neutralize the mood. It fluctuates easily. Loud laughters are bursted easily but lousy crankiness could set in almost immediately too. I will take smaller steps to conquer this area.

The next thing would probably be the tightness, numbness and uncomfortable pulling pain under the right arm. Putting it into a percentage count, this discomfort I'm feeling has just decreased by 10%. Again, I'm being impatient.

Upon the 3rd day of discharge, I had made a trip down to the hospital to have my seroma extracted. The pile of water has created a bulging pain and added on discomfort to the chest and underarm. I texted nurse T for ad-hoc appointment. T has always been accommodating and helpful in attending my requests.

T extracted about 135ml of seroma from the chest area. The procedure was like blood extracting, except that I didn't feel anything due to the numbness. The drain site gauze was replaced with a much smaller waterproof bandage. And I was given the approval to shower from there on :)

T also introduced me to the discharge kit/bra for temp wear until I complete or at least stabilise the swollen area before I purchase the silicone and permanent bra. In addition to that, T has shared with me a lot of newsletter from the support group which she established, and invited me to join the groups in the coming sessions.

...

Last night, I finally braved myself to call up my mum to tell her what I have gone through in the last 2 weeks. I was surprisingly calm and every tone was peacefully positive. That helped her go understand my situation, and ease her pain. As expected, mummy broke into tears and kept asking, "why does this happen to you? as if we don't suffer enough?" She's referring to my daddy who survived colon cancer for almost 10 years now, who also went through a bypass surgery for his heart problem, but ended up with dementia now due to his stroke attack 3 years back.

I felt her. But holding my tears, I can't help but to continue console her by saying, the last thing I want is to add on her worries and her burden. I told her I'm being well taken care of my family here. I'm just going to complete all the treatments recommended by the doctor and recover by early next year.

...

I feel relieved after informing my family members. I learn to be more open-minded and face the fact more positively now. All the supports from the loved ones, family members and friends have meant a lot to me, and given me the force to fight on.

Til then :)

Saturday, August 10, 2013

Day of Discharge | 10 Aug 2013

I'm getting sleep deprived at the hospital in the last few nights, where the sleep seems more like naps, with a lot of getting up to the toilet.

Woke up very lethargic to the morning of Sunday, 10 Aug. Although I still very much yearning to go home, I have set a neutral behaviour to avoid disappointment. I did my normal morning routine, walking around, having breakfast, watching the TV, washing up and waiting for Dr I to visit.

The drain site got almost soaked about 10:15am. Good thing Dr I came appeared 5 mins later. He checked the op site, checked the drain site, the bottle, the tube and trying to 'milk out' seroma out of the body / tube to reaffirm that the drain is serving no purpose anymore.

Then he let go the big sentence, "Ok, we'll let you off-drain today and you can go home!!" The 'lowering down my expectation' behaviour helped a lot. I was beaming instantly, excitedly spontaneously. 

The nurse put on a temp gauze on the leakage drain site while we waited for the specialist nurse from breast team to assist on off-drain.

I started to pack my stuff, really so much more things compared to the day I admitted. I went out to the reception area to share my joy with nurses in charge, to the cleaner auntie. The victorious hand sign which I put up must have lighted up the ambience.

Then the husband and kids came earlier than usual today. The discharge procedure turned to be quite fast to my surprise. First to visit was the pharmacist who brought all the meds for 'takeaway' and explained fluently almost like a pre-recorded sound system. Oh she's good.

Then came the breast nurse to off my drain about 12:20pm. This nurse is an assistant to T (no thanks to weekend discharge). She was pretty experienced too but a little too snobby to be a nurse. Well well... But I already hinted gently to T about this when she called after I got home :)

On the note of taking off drain, it was pretty ok for me, the pulling of the tube out of the body can be felt but not disturbing. The ouch part was actually on the antiseptic spray before this nurse put on a gauze to the drain site. That burning sensation...

Anyway, less than 30 mins later, my favourite (partner-in-crime) nurse came with the discharge summary, the MC, appt card and more explanation. I was very happy that she happened to be on duty today, so I could hand out my thank you card to her personally, and another thank you card to the nurses via her. We took photos together and I got to keep her number for future contact too :)

So, walking out of the ward room with bags and more bags, I felt like doing a round run along the area before parting! Don't worry, I didn't do that although it really crossed my mind haha! Then the nurse cut away my admission tag for the sign of freedom and good health! It felt really great!

...

During the 20min drive home, I started to do all the maths count. A total of 9 nights stay at the hospital, 8 days post op recovery and 8 days walking around with drain too, 1 breast gone, I think it all summed up to the step 1 of killing cancer! Way to go!!

Friday, August 9, 2013

Post Op Day 7 | 9 Aug 2013

Can't believe it's day 7 already. A week had passed since my surgery. That should explain my emotional kick today.

A little down and uncertain on when I could be discharged. Yesterday total drain was only 20ml. Rather than being happy, I feel puzzled today.

Cos Dr I noticed liquid accumulation on the chest when he came in the morning. That must have explained the sudden drop of the drain count.

Was taught to do more massaging on the area to help push the flow of the drain out nicely to that little container. 

So when I was diligently doing that, I only got a 10ml additional so far as I type. The liquid didn't go to where it used to. It went 'out' directly to my drain hole and caused leakage instead. 

Again? Yep and I have get the nurse to change the dressing twice. And I hope the thrice doesn't have to happen. I still feel the tingling sensation, and nurse and I both saw slight stain on the dressing already, although it didn't really flow out.

So I have been really paranoid in moving around. Should I move? Or I have been moving too much? Should I continue massaging? Or I should be stopping already?

I only wish the next morning could come earliest and so do Dr I tomorrow morning. 

I think I'm down to learn these complications happening on the 5th–7th day when one could actually be discharged during this period....

However, the companion I had today from the family was great. Though a little touchy initially on handling my emotions, but seeing the husband and daughter cheering me up was really heartwarming.

I should learn to handle myself better. Let's hope for a good news from Dr I tomorrow! Til then, good night my dear readers...

Thursday, August 8, 2013

Post Op Day 6 | 8 Aug 2013

130ml was yesterday's count for the drain (day 5)

It shot up and I had a little boo boo of drain leaking in the evening last night. Felt a gush of warm liquid flowing down my body and staining the bedsheet.

Panicky as it may get, I quickly pressed the call button for an SOS. The nurse changed the dressing for me and put on a gauze to ensure dry site before she left home at about 9pm. But about 30 minutes later, the same feeling came, although it didn't flow out this time (thanks to the gauze), so the night shift nurse had to sterilize and change the dressing again, this time using a see-through-waterproof dressing, so to be able to monitor the site easily.

I must have been moving too much today. Though the nurses told me that 'this sometimes happen'. I recalled on what I really did last evening.

I had a pretty good hair wash assisted by the nurse at around 6pm. It was the same nurse who assisted my 1st shower a couple of days back. I told her that she has officially become my partner-in-crime, since nurse T has strongly suggested me to stay out of shower and hair wash until the dressing is removed.

But she and her colleague did a really sweet job. What I needed to do was to lie down on my bed, straight up to the edge while they were putting up plastic sheet to hold waste water, and dry blue sheet to protect my bed. There she washed my hair almost with the good service like how my stylist did in the salon. It was really refreshing with the cold water running down through the scalp.

Smelling really nice, last night only 1 of the 2 visitors came. She brought cheese cake ooh la la and accompanied her with her sweet voices and good listening ears. After seeing her off, what I did was technically sitting down chatting with my college friend via facebook messenger.

Now I wasn't sure if I really moved so much...

...

Anyway, today, as of this hour, drain has been showing good record. It has not even reached 50ml (in the count of 15 hours and more). I was asking Dr I the possibility of me 'checking-out' tomorrow looking at the drain count. He didn't want to commit so not to disappoint me, he just said if it stayed below 50ml for these 2 days, I might be able to be discharged on Sat, 10 Aug.

Oh yeah! That's what I'm talking about. Sat is definitely better than Mon.

I got excited and kept asking any nurses who came by to check on my drain, like a proud child who is elated about her test results, and kept showing off herself! Also to ensure it's not some kind of faultiness going on with the drain, I made sure I did enough walking/physiotherapies/moving around too! *fingers crossed*

...

My babies came to visit me today during lunch time. The 4-of-us spent really good quality time together for close to 6 hours. We caught 3 movies on the TV, hugging, snacking, shopping at the lobby and stoning together. It felt good, except that I must exercise extra care when getting snuggy with the children in order not to hurt my wound. They went home at about 6pm earlier, after the husband taking away a lot of food for supper tonight.

*burp*

And now past dinner, we're back online skyping with one another's silly faces stuck on the gadget's screen...

Wednesday, August 7, 2013

Post Op Day 5 | 7 Aug 2013

160ml (day 2)
150ml (day 3)
110ml (day 4)

That's the total 24hr count for the drain from my body...

I'm not sure if I shared this before, but one's drain has to be as low as about 50ml for 2 days then the drain can be removed (if it has not reached the maximum of 10 days).

So, doing the simple estimation and calculation, I think I'm not able to be released on this Fri yet. And Dr I confirms my estimation this morning. He came and think I would probably need to use the drain until the 10th day! In simpler English, it means I could only be discharged on next Mon (12 Aug).

The consoling fact is that Dr I said I'm looking better everyday. That probably due to what I happened to be doing when he came. I used to be lying down, if not sleeping when he came in on his daily check. But yesterday I was doing my physiotherapy when he came in. And this morning, I was sitting nice and easy on the side coach, reading to newspaper, and hands attached to the iPhone 5, typing an email.

He asked if I was still working and advised me to take it easy and don't think about work in the meantime.

Must be that engrossed look on the newspaper and phone which he was referring to...

I was actually reading an interesting article on the local newspaper this morning, titled 'Nothing but the bald and heroic truth'. The article moved and encouraged me, with the clear writing of being bald will not decrease the femininity of a woman, and how the society should be more open and supportive to the patients who lose their hair due to chemotherapy etc.

Spontaneously, I picked up the phone and drop an email to the writer for encouraging article. This was my email to her..

Hi xxx,
I have just finished reading your article 'Nothing but the bald and heroic truth' on xxx.
Recently diagnosed with stage 2 breast cancer, I'm still recovering in the hospital from my mastectomy done last Friday.
I have recently discussed with the spouse that I'd like to shave the head bald before the chemotherapy starts.
And with the support of your article, I may just drop the idea of buying wig or headband just to cover the little bald head.
Thank you again! Way to go girl! :)

...

So I got a reply from the writer in less than 30 minutes later...

Hi xxx,
Rock on! I think you should get an mohawk! :)
Stay strong and I wish you a smooth treatment and recovery. Thanks for reading and for your e-mail. Happy long weekend!

...

And another 15mins later, the other colleague of her came writing to seek for permission should they decide to publish my email in the Saturday section!

A little overwhelmed, I paused and seek my friend's advise if I should be saying OK. What if everybody know what happened to me? Not that I mind... What if it affects anything? Like what?? I think the little voice inside me was actually panicking, what if my mum finds out...

So this is the little issue which I need to be handling soon. I think I should be informing my mum and family soon, since the ops has been done.

I just have to tell her that I found that damn C thing on my body and I have removed that damn thing. And now I'm going to kill any residue of it, should there be any in my body. So I need to shave bald, as I do not want to get depressed by seeing the losing hair. And I will be fine in the coming months, real soon really!

...

On the visiting note, today my dear colleagues came again to cheer me up. And they especially came earlier so that they could have the more of me before other visitors come :) How cool are they??

During lunch time, my mum-in-law brought my 2 kids, my niece to visit me. And the other sis-in-law also came to join us. I went down to the lobby again today, to order meals for the kids, thinking of not to starve the kids as the idea of the granny... And it's a perfect M fast food restaurant. You can imagine the stares I get from many strangers/patrons in the restaurant. "This lady must be damn hungry/craving/rebellious that she really have to come buy some fries and burger after her surgery!" -.-

Funny sight really, and they were really waiting to see if I sink my teeth to the fries.. Boo! How disappointing for them :) As I get the delish home-cooked broccoli and thread fin fish brought in by mum-in-law. So, bye junk food!

As for now, I'm waiting for 2 more visitors this evening.
Can't wait...

Tuesday, August 6, 2013

Post Op Day 4 | 6 Aug 2013

Finally today I'm blogging up-to-date, on actual day.

Last night, I managed to have undisrupted sleep without having to wake up middle of the night. However, the light sleeper me couldn't go back to sleep when nurses came to do morning round at 5:30am.

So rise and shine! I washed up and went out to do some walking exercise round and round the reception area at about 6am.

After breakfast, I started to google on some headwear/headgear ideas for the upcoming chemotherapy. I found this site http://www.headcovers.com which looks promising. How I came to this, was when I took the courage to ask Nurse T yesterday, if hair loss is a guarantee for all breast cancer patients. And the answer is Yes!

Then I had this idea of shaving the head bald before starting the chemotherapy treatment. Nurse T strongly encouraged me to do so, as she was sharing her other patients experience. Most devastating moment was when her patients saw the losing hair...

I'm 99% positive in doing so, as soon as I have the confirmation of treatment schedule from Dr H. So I wanna buy at least 1 nice headwear as a start, to cheer me up :)

Back to the website, the founder of the website was a cancer patient too, and she fought almost 15 years against it. Her story was inspiring, but I didn't like how she finally lost the battle. It was a victorious journey, as she gets to see her children growing up and attending their graduation. But deep inside me, I was questioning, can't one defeat cancer totally? And just grow old.. beautifully in life?

I felt crushed...

...

Picking up myself again from the negative thoughts, there's one great thing to celebrate today. My daughter got balloted into our choice of school. And yay to that! The school has a reputation as the 2nd good school in the neighbourhood, and that would also means an easy entry for the little brother in the next 2 years.

Cheering to that, I asked for permission to go down the lobby for a walk in the morning. The nurse provided me with a kimono gown, and I brought my recycle bag to carry the drain inside. Spent almost an hour at the shopping area. People were staring, but good thing was they were also giving way to me, in order not to hit or bang on me. It was a good work-out with the adequate bathe of sun, but it left me a little bit too exhausted upon reaching my ward. I have to learn taking it slow and not pushing the limit too hard.

During lunch time, 2 of my colleagues came visiting with food, reading material and well-wishes again. I thank them for liven up my lunch hour, just like the old days with a lot of catching up and updates.

Then sis-in-law came delivering food cooked with love from mum-in-law. I'm a happy fat woman today! :) The colleagues and sis-in-law 'exchanged shift', so sis-in-law was the one who continued to keeping me accompanied.

...

After dinner, I learnt that the auntie cleaner would be taking leave tomorrow (as an eve to her new year), and subsequently will be off duties in the next 2 public holidays. I walked up to her and said thank you for everything. Now I'm going to write a thank you card for her, while waiting for the husband to arrive.

He'll be keeping me company tonight :)

Post Op Day 3 | 5 Aug 2013

I started losing count on what day and what date it is.
It was post op day 3, but hospital stay day 5...

The nurses have been cutting down their rounds in the midnight. They did their last check on me by 10:30pm the previous night, and they would come in at 6am to check on BP, temperature and drain.

Dr I reported earliest to see me. He is one doc who would approach with a little sense of humour and telling me, "When you're bored, please let us know.." The hospital would like to encourage patients to be assured to be discharged, even with a drain on the body.

We wouldn't want to take the risk, so the option is out. Dr I did an estimation and told me hopefully he could send me home on Fri 8 Aug. I certainly hope so. By then, the drain will be on its 7th day. FYI, the maximum days the drain can be attached to one body is 10 days, as any longer than that, infection may come knocking...

Dr J came too in the morning. I really enjoyed listening to her accents. I feel very empowered talking to her in a proper English :) Dr J informed that normally in the weekdays, the chances of Dr H dropping by is very thin. That translates to me as, "Me or Dr I will come more often to see you to replace Dr H."

...

My colleagues informed that they'll be visiting me today. Got a little anxious with the news of about 10 over people coming in at the same time. Oh will they laugh at my appearance? Will they smell my smelly bed? Will they find my drain too intimidating? Will they see my flat chest? Do I have to change to a normal clothing? etc etc

Before I could reacted much, the 1st car of people came. Then the anxiety and whatsoever disappeared. Oh I miss these people!! I felt warm and loved with them visiting. Then the 2nd car of people arrived. *felt very moved* And not for long, the 3rd car of people arrived too. There were total 12 colleagues of mine came visiting today. How awesome they are!

They came with food, and more food, soft toy to keep me accompanied, sizzling news to keep me updated, interesting videos taken from their personal lives, silly jokes and more silly jokes. And not forgetting all of their compiled well-wishes in a big envelope. Thank you people! I was seriously encouraged by every one of you!

In the midst of our conversation, nurse T came to change my dressing. So everybody have to go. The colleagues must have noticed me being upset, so they said, "We'll come again tomorrow!" Super yay! to that!

Back to nurse T and the dressing change. I got to see the stitch on my chest, thankfully it was quite neatly done. That must be Dr H performing his best, back at the OT room. The changing didn't feel painful, in fact there are a lot of numbness in the underarm and right body. Nurse T said that it will take a few months before I could get back all the sensations, as all of the nerves in that areas were seriously affected by the surgery. Sigh.. That explains all the pulling, tingling and tightness in the right part of the body.

Nurse T 'highlighted' to me not to wet the dressing again, and she would only be seeing me on my day of discharge. Cos she'd be the one who's removing the drain as well on my day of discharge. If all goes well, all the dressing will be removed too. And I could go down to the Breast Centre to purchase a special bra with 'filling' (I don't know what the term is called, at this point of time).

I can't wait for that day!!

The husband came after work that night. He helped me finish some of the food bought from my colleagues (oops!) and talked a little. I felt really empty seeing him walk off the ward that night. I shall do my count-down to the day of discharge soon!

Post Op Day 2 | 4 Aug 2013

A beautiful Sunday morning, where our usual routine will be fighting the morning rush to send the daughter to her weekly tuition by 10am.

But I was quietly, peacefully enjoying my breakfast served at around 8.30am. I started to make a lot of conversation with the nurses, the cleaner auntie, anybody who came to sight!~ I paid attention to their daily routine, I started to understand how things work around in the ward. I think nurses here are really doing a good job! Well-respected!

The husband came after dropping the girl into her tuition centre. Had breakfast in my ward, we talked a little. Not too long, my mum-in-law had called him over to be the delivery guy for my lunch (Ha!) So poor man took a route back to home, picked up lunch, went to pick up daughter at the end of her class at 12pm, and both came to see me again about 12.30pm.

Just before they reached, my main attending doctor, Doc H came to check on me (like finally!) He was more like a daddy image to me, I don't know why. On the decision-making day, he told me not to worry at all, as it'd just be a small surgery. Then today, he told me the pain and discomfort which I'm feeling is common, as I just had a big surgery. -.-||

I guess he's just doing his doctor charm, huh?

So Doc H gave me an estimate visual on what's coming next. I'd probably need to visit him 1 week after my discharge (which is estimated to be a total of 7–10 days stay at the hospital). Then from there, he will explain to me on my chemotherapy treatment dosage and schedule. He told me to take thing one step at a time, now what I need to do is do a lot of exercise, walk around and eat as per normal.

...

It was great to be able to spend a few hours with the daughter and husband that afternoon. And we had 2 groups of visitors too in the afternoon, both coming from the husband's family. I'm thankful for all of the supports and concerns given. Thank you!!

Oh with the help of one young nice nurse, I was able to take my shower and hairwash. The op site was covered with plastic and surgical tape. That felt really refreshing. However, some water went in and damp the dressing. We had to use the hair dryer to air-dry the bandage, as the dressing would be changed only Breast Team, and Breast Team doesn't work on weekends!

Spent the night alone too cos the I have requested the husband to go home and rest too for a new working week the next day. Affecting his performance at work, would be the last thing I wanna see happening...

Post Op Day 1 | 3 Aug 2013

I was really blessed that I'm able to come down by myself and to the toilet, by myself in the morning around 8am++

By then, I think there had been about 4 doctors came to check on my wound/dressing and drain since the surgery. Then I learnt that there were actually all under the team called the Breast Team, inclusive of Dr H, Dr J, newly introduced Dr I, and nurse T is also part of the Breast Team. (What a name!)

So it was a nice Saturday morning. I was waiting for the husband to come visiting. However, he had to send the son to the doctor (same hospital, just few levels below) due to fever. Son has been complaining of a hurtful hand, then the fever. Good thing the PD took a x-ray on his hand and checked on him but found nothing significant. Prescribed paracetamol and ibuprofen for him and he came up with his daddy to see me then.

The son and husband didn't stay long as daddy wanted him to rest well at home. So he sent him home before lunch. An hour later, the husband came back with my daughter, niece and sis-in-law for visiting. My little girl got a little shocked when she saw my drain and asked what was that! They also brought porridge lunch cooked by mum-in-law, stayed a little with me before the ladies left to do some shopping.

The husband stayed on til about 5pm that evening. We both took a little naps. And we also had another visiting from close friends (Mr and Mrs JW) before they all left the hospital together.

I enjoyed the company of friends and family visiting. Initially was taken aback from the idea, but hey I was quite afraid to be lonely. So I love all the talking, giggling, chatting in my ward.

As the husband had a family dinner invitation that night til almost 10pm, I requested him to go home and rest too. I finally started my first post that evening. I slept with the light and TV on, while checking the phone constantly for messages from friends :)

The normal BP, temperature and drain check still took place in a close interval (about 2–3 hourly). Oh, there was a visit paid by physiotherapist too in the afternoon, checking on my exercises if they have been done up correctly, and she's creating awareness on lymphedema (something which I must prevent from, since I've got all my lymph nodes removed on the right arm.) Then nurse T also came to see me! I felt great!

Monday, August 5, 2013

Surgery Day | 2 Aug 2013

It was a quiet morning as compared to the day before, where I was visited by anaesthetist, physiotherapist, assistant surgeon in the ward. It was just a normal BP checking on surgery day morning. The husband and I were still catching up on our drama on the laptop. I took a long long shower before I finally succumbed to change into my ward gown, and subsequently OT (operating theatre) gown.

A few minutes before 2pm, one nurse came to pick me up using a wheel chair. The husband followed us into the lift, into the basement, right outside the door where he could no longer follow.

The nurse pressed the bell and I parted goodbye with the husband. What was I feeling at that moment? Pure anxiety and worrisome.

Being pushed inside, transferred to a special chair where more people came to attend to me. They identified themselves as the OT specialist whom will be inside the OT room throughout with me. They explained slightly on what comes next. Gave me the cap to put on (like a shower cap). Then we walked to the OT room. The place was like a maze, there were many people working and many different OT rooms available. Like a laboratory, or like a research centre to me...

Reaching the OT room, it was a white room with some green paint here and there (ie door etc), I was asked to lie down flat on the OT bed. The bed was warm for a reason, then there's an auntie with an ID 'OT technician' who prepared me further with oxygen level clip on the thumb. BP wrap on my left hand which automatically activated in a certain timing. Some sticky labels on the body to monitor the heart beat.

The OT technician also put a warm air into the blanket for me so I would be comfortably warm throughout the surgery. And then there's this leg massager wrapping both of my lower legs which will vibrates in every few minutes to trigger massager to the legs.

Then I saw the assistant surgeon who I met the day before. She's Dr J, a very assuring lady who keeps exchanging gazes with me. She noticed my anxiety, and kept walking towards me to comfort me, although I didn't quite remember what she told me, but mostly she wants me to feel that I'm in good hands.

Then came Dr H who came to check to confirm the op site to be the right breast, and gave me a little pat on the back that I'll be fine. However I did remember I told him to "give me good stitches" and he replied as "we'll do our best!"

More and more professionals walked into the OT room, there were discussions, there were different teams of people with different roles. Came 2 anaesthetists who approached my left hand and tried to find my vein to create a drip for the drug, and boy they were really having a hard time to find a big fat to start with.

At that moment, unknowingly I started weeping for no reason, tears dropping and Dr J caught me red-handed. She came to comfort me again. After a few tries and minutes, the anaesthetists finally did it and was trying to take blood samples before putting on drip.

Probably taking too long or either seeing my lost look, I heard them talking to each other to put me to sleep instead. With the green light of Dr H who came and said, "OK everybody, let's start!" somebody put a breathing mask to me and trying to bluff me as 'oxygen' and asked me to take really deep breath. I managed to take a peek at the wall digital clock as about 2:15pm

Breath in, breath out, breath in, breath out, then came an awful strong flow of smell through the mask, I looked at the bright lights above me, blink, blink and a few more blinks, and there I went passed out...

...

When I started to hear somebody calling me, "Hello xxx, your surgery is completed, you are now at the post op observation room." It was actually still at the 'maze' which I referred to. I felt really dizzy, couldn't really stand to open my eyes for more than 5 seconds. But I gathered enough conscious to ask the nurse, "Have you all informed my husband?"

Again, peeking at the clock, it was close to 5pm. I felt very uncomfortable on the throat, like a super heaty sore-throat. This was due to breathing pipe put in to assist my breathing due to the surgery, fyi. I asked for a sip of water. Sipping with care, I remembered at the back of the mind that Nurse T advised me before that vomitting would be a 'disaster' if it happened after a surgery. That would mean more drips for the next couple of hours if not days. So the warm water was the best thing taken since the fast the night before.

Nurse confirmed that one of them has called the husband to report. Nurse was asking me to rest while they waited for the drip to finish. I think they put that during the surgery too, for source of minerals. So drip finished around 5pm. They were checking if I was ready to go back to ward. Oh yes definitely, I nodded strongly.

...

Being pushed back on the bed, to my ward, I still feel dizzy like in a wonderland, on a theme-park ride. A few nurses transferred me back to my ward bed, and there I asked for more water, and understood that the husband had gone home... I asked for the ward phone, called the husband and found out that he was on the way back to the hospital with the family members.

I felt relieved, I felt 'my 1st step to fight the big C was over!', I felt victorious.
And I let my eyelid took the lead to rest the eyes and the mind as the anaesthesia effect was not worn out completely.

The next time I opened my eyes, the husband stepped into the room, with my daughter and son, mum and dad in-laws, and my niece. I felt really happy to see them and I started talking non-stop on how 'high' or rather how 'elated' to see them.

I managed to eat a few mouthful of porridge cooked by mum-in-law and a few bites on the steamed fish prepared by the hospital. And a lot of water. Damn the sore throat...

That night the husband sent the family home and I requested him to rest well at home. Wise choice it was, as it was a busy night at the ward where the nurses came to check on my BP, temperature almost every hour, with 2 doctors came visiting to check on the wound, the drain and my breathing in the interval of night to 6am the next day.

Oh and I went for the 1st urine passing in the middle of the night with the assistance of a super nice nurse from the Myanmar. That getting up left me super nauseous and luckily the nurse assisted well and quickly put me to the bed again to rest.

Admission Day | 1 Aug 2013

I had to be admitted 1 day earlier to prepare myself for the big day.

So in the morning, I re-look at my admission bag trolley luggage, the one which I could easily pull and walk around with. I cleaned up the house as much as I could, so the husband will not have too much to do during my hospitalization stay later. I prepare the kids' bag and clothes for their stay at the in-law's while I'm away. I cut fruits for the husband, so that he could have it after work that night. Technically, as much things I could do to ease myself too after I discharge (like refilling the shower gels, the dish wash etc). Funny isn't it?

Then I went to meet up with the husband for a little lunch date nearby his office. We went to this new-found french restaurant which we both loved. I love the food, I love the short meet-up. Oh, we also get the chance to shop a little for the kids. The husband want to make sure the kids enjoy their stay at the granny's, so he bought toys. And I bought goodie stationery bag for my son, who soon to celebrate his birthday at his school :)

As reluctant as I was, I had to report to the hospital for admission at 2pm. So I reached the hospital around 2:30pm, took the queue number and the waiting game started.

The processes and the time reached my ward is around 3:40pm. It was a good ward with a lot of privacy and amenities. I have the in-house local phone, the attached bathroom, the internet, the windows, the couch for the husband overnight stay, cupboard, working desk and arm-chair, and a safe. 

Meals choice is ala carte, and I'm able to order what I'd like from the menu everyday. Not bad huh? 

Not used to the confined feeling, I went down to roam around the shops at the lobby and window shopped at all the beautiful things. 

I then found out my surgery time for the next day, it was scheduled at 2:30pm at Fri, 2 Aug. I ranted a little bit to the family members knowing the fact that I needed to fast from 12 midnight. It'll be a 14.5 hours wait without food or drinks.

Well, well...

The husband joined me at the ward that night after he went home to settle the chores. I took my strength to savour the yummy food my in-law prepared. Dish per dish, I finished the last baked chicken at 11.30pm! :)

We had difficulty to sleep that night. I had weird dreams about snake. And I could see him waking up a few times in the middle of the night...

Pre-Admission Tests | 1 Aug 2013

I came back to the hospital for some pre-admission tests.

And I managed to have a good chat with T again that morning. T asked again for the thought of reconstruction. T emphasised that, the decision is all back to me, cos even though with the support of family members, what matters most is what my thought is. T was happy to know that I've got the support from the husband. I think she was really coming as a sound of a woman.

I did pause a little. But to summarize on what the husband and I talked (for the 2nd time) at the dinner premise the night before, I am positive that I wanna go ahead without the reconstruction.

FYI. There'll be a chance for implant or reconstruction in future if ever the needs arise. Just that if it was to be done on the same day of the surgery, the result achieved will be better and procedure will be less complicated.

...

Back to the tests.
There's a special department for this pre-admission tests. This recent visits at this public hospital had really awe me with their good systems and protocols. It had changed my perspective about public hospital, really!

Ok, now really back to the tests.
I did a heart test where the nurse will stick on some pads on to the body and print out graph/charts for the doctor. I also had my blood drawn again, they took almost 4 tubes of blood sample on that day >.<
Then I had to do chest x-ray, apparently this is to see if the lung is functioning properly. As opposed to the CT scan where it was to see if there's any abnormality or tumors anywhere at the chest.

Then there's a special consultant who walked me through on the financial billing, she gave me an estimation on bills of the whole procedure.

...

After the whole thing, I went back to the office again to wrap up the handover, to see the HR Manager again, to see my boss, to see my colleagues. To tell them that I'd be back real soon! :)

Just The 2 Of Us | 30 Jul 2013

I've asked for a date with the husband. The in-law strongly supported and offered to take care of the children as well.

I put on my most recent bought dress, I want to look pretty for the day!
I want to create beautiful memories with the husband.

We had absolute fun, togetherness this whole day.
We held hand, we talked, we giggles, we laughed and we hugged at the theme park in town. After spending good 8 hours there, we then proceeded to have really good dinner.

It was the most awesome, lovely day in the recent years.
I'm glad I requested for this. It was a truly beautiful day!

The Decision-Making Day | 29 Jul 2013

The CT scan and bone test results were negative, everything was normal, and I thank God for that.

So the appointment with Dr H that day was to confirm on our decision.
Mastectomy with lymph nodes removal I re-confirm.

Dr H was still offering if I'd like to do recon for my aesthetic concern.
Holding tight the husband's hand, I replied, "We have discussed, and we would opt that out."

Then it was the choice of surgery date whether to be 2 Aug or 16 Aug. 16 Aug was way too far apart and I think I'd have too much wild thoughts lingering again by then. So we confirmed that we wanted 2 Aug, which is 4 days apart from that day. Then we placed some signatures here and there as a documentation purpose.

Sunday, August 4, 2013

The Precious Weekend | 27–28 Jul 2013

The husband, daughter and son spent a brilliant time with me that weekend. We dined out, we spent time doing silly nothing but was all worthwhile seconds spent.

That's when the inspiration of this blog name came about. I promise to precious every second, making every second counts, waste no quality time anymore.

Oh I did cook up a meal of spaghetti bolognese for the family. I remember during groceries shopping, the husband picked up a bar of dark chocolate for me. He has been awesomely sweet.

Reflection: indeed it takes a waking call for people to re-look on our lives and the people we love around us. I wish we never had to go through this to be this close again.

But on the contrary, if not for this cancer, we might not have gone back to such a lovely state again.

The husband and I had a long quiet talk on Sunday night, after the kids were asleep. 

He apologised to me, he felt remorseful and felt the guilt if my condition has developed due to the stress he has given me. Dear husband cried and wept that night, one scene which I had not seen for at least 6 years. He opened up and shared his concern on my choice of surgery. He asked me to reconsider and drop the idea of breast recon as he wouldn't bear having me go under the knife for additional 8 hours just for the recon.

It was a long talk which had never taken place for some time really. I truly appreciate it for this man who stands by me. Seeing him cry makes me hold my tears. I need to be strong, I must be strong and face everything that comes along. It hurts to see the loved one saddens. It hurts to see my man worries and uncertain.

I promised him to walk through all thick and thin that are coming...

CT Scan and Bone Tests | 26 Jul 2013

I was asked to fast from the midnight of 26 Jul, so I could be able to do CT scan first thing in the morning.

Arriving 8am at the hospital, registering to the X-Ray department, got changed to special gown and proceeded to waiting room. I was schedule to do chest, abdomen and pelvis (if i remember correctly) CT scan in the morning.

First I was given 1 cup of water, and 30mins later the 2nd cup.
Nurse said it was plain water. I doubted it, I think it must have got some special liquid added on to it.
In between the 2nd and the 3rd cup, the nurse had to insert a needle on my hand to standby for the contrast of bone test later. There are really quite a number of medical terms which I learn lately!

Contrast is a form of liquid inserted to the body to promote better appearance of any kinds of scans. Yeah, to have more contrast to show in the film/result/x-ray, you name it...

Then another 30mins later was the 3rd cup of water, then I was called in to the CT scan room not long after. Considered a pretty quick procedure, but there were a few things which the specialist did to me, like inserting a tampon to the vagina, inserting a colour contrast (dye) to the anal for better 'contrast', better scan. I think the whole lying down process takes about 20minutes.

The dye contrast left me with some burning discomfort in the tummy and weird motion passing thereafter >.<

After the CT scan was done, I was brought to another room to have the bone test contrast (remember the needle?). It was a radioactive contrast! The preparation of the liquid looks very mysterious and everything was handled cautiously. One of the doctors then injected the radioactive into me. This liquid was expected to be flown all over the body in the next 4 hours. Therefore I have to come back 4 hours later for the actual bone scan. Luckily, the drip/needle can be removed immediately, so I could relax in the next couple of hours without anything poked or attached -.-

4 hours passed on, the bone test was a more relaxing one. I had to practically just lie down on a bed with clothes on, even with blanket on (how thoughtful!) and told to relax and sleep — which I really did. The procedure was like a photocopying procedure, except that the plate moves very slowly, really s.l.o.w. to capture every single details. Overall procedure took about 1.5 hours.

End of bone test, I was asked to rest and drink more water in case all the contrast in my body created any side effects.

Spilling The Beans | 24–25 Jul 2013

24 Jul 2013
First hand news was informed to my mum-in-law after I have got home that evening. Dear MIL was very comforting and giving me a lot of words of encouragement. She offered me all the best part of dinner meal that night. I'm really appreciative of all that she has done for me since that day.

25 Jul 2013
Next bunch of people who knew this were my colleagues (the boss and fellow peers so I could prep them on my absent in the coming days). My HR manager so to find out the options and insurance covered in the group insurance policy.

Then my own personal insurance agent.

The husband was next on the list, as he had just touched down that afternoon and finished his works at the office at 6pm. He came to pick me up in the cabbie, he was trying to ask me to elaborate my sms to him last night ("results didn't turn out well, will need to do more tests on fri 26 Jul and see the doc on treatment procedures on mon 29 Jul")

I couldn't face him and I turned him down by saying, "let's talk when we're home..."

So we did. I broke down again in front of him while telling him the news. The husband took it well, calm and comforting, he listened on whatever Doc H and T told me in the past visit.

I was really glad that he gave me the space, the breathing space, and all the decision right that I need to make. With his loving support, the journey we were about to embark was very assuring...

The 'Positive' Day | 24 Jul 2013

The 1st look when I stepped into Dr H clinic was not that good. I could sense it that things were not right. Dr H was even more calm and slow in conversing to me. He said, "This is very unfortunate, but you have been tested positive, the lump on your right breast and the lymph node extracted from biopsy are cancerous. Don't worry about this. We will take good care of you."

It was true when usually we read that one's world could get spinning, or some of the sentences felt like they are drowned underwater. I felt exactly like that.

Trying to stay calm and hold my emotions (since I'm alone..) I could even feel the nurse warm gazes showing empathy on me.

I started talking silly thing in front of Dr H. I think this was the symptom of uncontrollable emotion breakdowns. I asked about my blood test result (for HIV, Hep B, Hep C) which I volunteered to do cos the chatty nurse had cut into the needle performed for my biopsy on 16 Jul.

Dr H must be finding me amusing to ask such question. But he did answer quickly by saying, "It was very nice of you to do that for the interest of the nurse. But for now, we're going to focus on taking care of your cancerous condition first, okay?" Yep. Like a daddy talking to a 'lil girl.

He told me to wait outside, that there will be breast nurse specialist who will walk me through things. Trying to hold back my tears, I told myself to have good deep breath to hold them up.

A little less than 10mins, I was called into a room for consultation with this lady nurse T. I sat my butt down, letting a big sigh, and there I went out loud, I finally broke into tears. T gave me pack of tissue and asked me to cry it out. She said it's okay, please let it all out.

She asked where my dear husband was and if I was okay to go back alone later, if I needed accompany to go back. After a few minutes, I was able to control myself again. T then started explaining the surgery options.

Mastectomy is the main choice, it means removing the whole breast since there were 2 more suspicious lumps on the right. If I ever wanted a lumpectomy, I still needed to perform biopsy for those 2 lumps to ensure that they are still good cells. Both Dr H and T had strongly suggested mastectomy as a more aggressive take to treat me due to my young age.

T explained about the option to have breast reconstruction, duration of healing, what to be expected after surgery, chemotherapy, radiotherapy and many more. I must say that T has really been patient to explain almost anything for me (through appointments, phone calls or sms.) She's my guardian angel.

After maybe 30–45minutes, I proceeded home via the usual feeder bus and train service. Many thoughts came to mind. Tears coming down and pushed back with all might. I knew from then on, that life is not going to be the same anymore...

6 Months Review | Ultrasound, Mammograms, Biopsy

1 July 2013
The appointment started with a follow up ultrasound after 6 months. The ultrasound specialist was very detailed and thorough.. which made me fallen asleep in between. She showed some concern, and she invited her senior to come in and look at the scan.

After some discussion they asked me to proceed with mammogram as there's 'something' which they wanted to be sure of..

Before mammogram, the other nurse told me of the possibility in doing a microscopic mammogram if this one couldn't capture enough details.

True enough, I had to do 2 types of mammograms. It gets me worried again. However, after all of the procedures, nurse informed me to go back and see the doc (which according to the appointment) 2 weeks later to review the scan results.

I thought if it's something urgent, I would be called even before the appointment. So there's a 50-50 wish that I'd be just fine at the end of the day.


15 July 2013
Doc H saw me with a little different behaviour on that day. He was telling me gently that a few lumps and lymph nodes area spotted with suspicious results on the right breast. I needed to go through a biopsy (extraction of tissues from the areas to be examined under a microscope) the very next day. Which Doc H mentioned he would like to know whether this thing was cancerous or not.

That 'cancerous' word certainly struck me. Told the husband and my mum-in-law in the evening about this. That I'd be on 2 days MC due to this procedure. They take it very positively and brushed it off with a remark like, "You'll be fine!"

A few colleagues were informed too as there was certain appointments and meetings which needed to be handed over. Everyone comforted me that it was just an SOP and this will be fine.


16 July 2013
So this was the biopsy day. Met a talkative biopsy surgeon and a chatty nurse, they made the procedure a little less tense. But I was still scared. I was trying to compare the intensity with birth-giving to distract myself. I think it's still far from birth giving, but this is more scary in a sense that I was wide-awake and listening to everything the doc and the nurses conversed, and the little stapler effect with loud sound, *snap snap* on the breast. Apparently that's the extraction of the tissue performed.

Phew~~ the whole procedure left me with cold sweat, sores on the breast and armpit (2 biopsies taken, 1 on the lump and the other 1 on the lymph node). Told to do light activities and not to bang myself on the area and not to carry anything on the right shoulder for that 2 days.


17–23 July 2013
It was a waiting game. The husband still could joke, "Thought in the HK drama, usually results will be out the next day and you would be called?" I returned an ignorance glance to him. As Dr H has confirmed an appointment on the 24 Jul, I should be waiting til then.

Deep inside I prepared myself for results should it turned positive. If it's negative I'd be jumping with joy and thanking the God. Should it be positive, I have talked to the God of Mercy to walk me through the tough time, that I would be fighting on, I would not be giving up, and I would just do whatever is necessary to recover. 

There's this 70% instinct which told me that I could be positive. But the remaining 30% was also fighting to be acknowledged. I don't know who to talk to as the husband had to be posted overseas from 22–25 Jul for work.

Saturday, August 3, 2013

Here comes January 2013

The 1st appointment on 2 Jan at this public hospital with the Senior Specialist, Dr H, was a very quick one. He went through the scans done previously from the private hospital, did scanning and check for himself. Nothing significant was spotted. He asked to come back for review in 6 months' time.

That's it??

Yes, that was it.
This thing about ultrasound and doctor's individual checking got me really puzzled.

Anyway, my simple thought was, I shall be waiting til July then.
If I passed the test in July, that means I'd be good to move on with life!

An Introduction | Lumps, Blood Discharge and Duct Removal (?)

Having had the thought of setting up this blog since my 'positive' biopsy result in 24 Jul 2013. And finally I'm here, taking the courage and thankfully the strength gathered, to be able to choose a little nice template and manoeuvre around the page.

How it all started?
I first went to see a breast specialist in Jul/Aug 2012, with the concern of lumps felt on the right breast. Actually I felt it since I last stopped breastfeeding my son in July 2011. He has had this preference on the left breast over the right, cos the right wasn't too productive and giving slow flow which my impatient boy really hated! (I should have taken that cue.. blah!)

So what initially thought as the engorgement or maybe milk residue left-over had worried me, cos when accidentally pressed-on by the kids at home (I have 1 6yo daughter and 4yo son, fyi), it felt painful and how could engorgement stayed on so long??

1st specialist, who was recommended by a friend, is a lady doctor, Doctor E, from a private hospital. Ultrasound and initial checking showed normal. Was told to come back in 3 months time if I remembered correctly.

But in Oct 2012, I went back to see Doc E again as I had a sudden blood discharge from my right nipple out of nowhere. Though it was just a one-time discharge, I was worried sick at the clinic the next day. Doc E took blood sample and tested. She told me she would call me if there's anything abnormal.

Would really hope to silent my phone all the time and ignored any calls which get through, but Dr E really called. Asked me to go back to her clinic to explain to me in details. So I did. Her explanation was there's a swollen duct, it's inflammed and abnormal, but it's nothing that they could detect further. Prescribed me antibiotic and asked me to go back again in 1 weeks' time (after I finished my antibiotics).

1 week later, Dr E did the scanning again in her clinic and still that duct looks bigger than usual. Her suggestion is to have a surgery and remove it, just in case it turns bad.. I was skeptical, really skeptical. Here I was worried for my lumps, there you asked me to remove my duct. There were a lot of 'what ifs..' in my mind.

After carefully thought about and discussed with the family members, plus the TCM doc which I've been seeing. We came to the conclusion of getting a 2nd opinion, from another specialist. Words have it that private hospital and doc would just ask you to go under the knife for their interest sake.

Through a little more research and careful financial plan, I asked for a referral letter from the company doc, so I could be referred to this women's specialist hospital and seeing a Senior Specialist. I feel I'd be in good hands soon, although the earliest appointment was not available until January 2013.